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<description>Join host Jerry Franz in getting to know what the nation&apos;s most trusted health charities can do for you and your family. Every two weeks the Health Matters at Work podcast series explores current health topics by interviewing experts from America&apos;s credible health charities in a talkshow format. Learn about more about your own health and the health charities that can provide you support, information and services to live a healthier life.</description>
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<br />

In this episode of the Health Matters at Work video podcast series, our host Jerry Franz sat down with representatives of three of Community Health Charities&#8217; member charities to discuss a topic of common interest, pregnancy planning. For many women, planning their pregnancy is one of the most exciting and happiest times of their lives. For others, it can be a stressful and confusing time. In fact, half of U.S. pregnancies are not planned at all. Regardless of the circumstances, one of the most important things women can do is to prepare their bodies and minds for optimal health during their childbearing years.

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<br />

According to the Centers for Disease Control, youth obesity has more than tripled in the past thirty years. As a result, many children are increasing their risk for heart disease, diabetes and a host of other ailments. Alliance for a Healthier Generation (AHG) was founded by the Clinton Foundation and the American Heart Association to combat this problem and to encourage children and their parents to make healthier life choices.

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  <blip:puredescription><![CDATA[Community Health Charities is pleased to welcome Dr. Jeffrey Laurence M.D., Professor of Medicine at Weill Cornell Medical College and Senior Scientist with amfAR. A Community Health Charities member, amfAR is world&#8217;s largest private research organization dedicated to AIDS research for prevention, treatment, and someday &#8211; a cure. Our podcast host, Jerry Franz, met with Dr. Laurence to discuss the cutting edge HIV/AIDS research and treatment have turned what was once a certain death sentence into a manageable chronic condition.]]></blip:puredescription>
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<br />

Community Health Charities is pleased to welcome Dr. Jeffrey Laurence M.D., Professor of Medicine at Weill Cornell Medical College and Senior Scientist with amfAR. A Community Health Charities member, amfAR is world&#8217;s largest private research organization dedicated to AIDS research for prevention, treatment, and someday &#8211; a cure. Our podcast host, Jerry Franz, met with Dr. Laurence to discuss the cutting edge HIV/AIDS research and treatment have turned what was once a certain death sentence into a manageable chronic condition.

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  <blip:puredescription><![CDATA[In this latest podcast in Community Health Charities&#8217; Charity Spotlight series, host Jerry Franz asks the questions &#8220;How serious a health problem is HIV&#8221; and &#8220;what role does amfAR play in research, advocacy, and education?&#8221; The answers are provided by Chris Collins, Vice President and Director of Public Policy at amfAR. amfAR is world&#8217;s largest private research organization dedicated to AIDS research for prevention, treatment, and someday &#8211; a cure. As many already know, HIV infection can eventually lead to AIDS and there is currently no cure. There are approximately 1.1 million people in the United States living with HIV with about 56,000 new infections each year. According to Mr. Collins, the rate of new infections has not dropped in ten years. &#8221;We need to get better at diagnosing people so they can get the care they need and we need to improve our prevention efforts.&#8221; Since no method of prevention is 100 percent effective at all times, testing for HIV is imperative. If someone believes they may have been exposed to HIV, they should be tested right away. As mentioned in our podcast, testing is offered free in many health clinics throughout the United States and HIV testing methods are the most sensitive and effective diagnostic tests in all of medicine today. Testing for HIV is important for many reasons but most of all, early detection can save or prolong life for those who have contracted the virus and prevent them from passing it on to others. About amfAR Founded in 1985, amfAR is dedicated to ending the global AIDS epidemic through innovative research. With the freedom and flexibility to respond quickly to emerging areas of scientific promise, amfAR plays a catalytic role in accelerating the pace of HIV/AIDS research and achieving real breakthroughs. amfAR-funded research has increased our understanding of HIV and has helped lay the groundwork for major advances in the study and treatment of HIV/AIDS. Since 1985, amfAR has invested nearly $325 million in its mission and has awarded grants to more than 2,000 research teams worldwide. To learn more about amfAR visit www.amfAR.org.]]></blip:puredescription>
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<br />

In this latest podcast in Community Health Charities&#8217; Charity Spotlight series, host Jerry Franz asks the questions &#8220;How serious a health problem is HIV&#8221; and &#8220;what role does amfAR play in research, advocacy, and education?&#8221; The answers are provided by Chris Collins, Vice President and Director of Public Policy at amfAR. amfAR is world&#8217;s largest private research organization dedicated to AIDS research for prevention, treatment, and someday &#8211; a cure. As many already know, HIV infection can eventually lead to AIDS and there is currently no cure. There are approximately 1.1 million people in the United States living with HIV with about 56,000 new infections each year. According to Mr. Collins, the rate of new infections has not dropped in ten years. &#8221;We need to get better at diagnosing people so they can get the care they need and we need to improve our prevention efforts.&#8221; Since no method of prevention is 100 percent effective at all times, testing for HIV is imperative. If someone believes they may have been exposed to HIV, they should be tested right away. As mentioned in our podcast, testing is offered free in many health clinics throughout the United States and HIV testing methods are the most sensitive and effective diagnostic tests in all of medicine today. Testing for HIV is important for many reasons but most of all, early detection can save or prolong life for those who have contracted the virus and prevent them from passing it on to others. About amfAR Founded in 1985, amfAR is dedicated to ending the global AIDS epidemic through innovative research. With the freedom and flexibility to respond quickly to emerging areas of scientific promise, amfAR plays a catalytic role in accelerating the pace of HIV/AIDS research and achieving real breakthroughs. amfAR-funded research has increased our understanding of HIV and has helped lay the groundwork for major advances in the study and treatment of HIV/AIDS. Since 1985, amfAR has invested nearly $325 million in its mission and has awarded grants to more than 2,000 research teams worldwide. To learn more about amfAR visit www.amfAR.org.

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  <blip:puredescription><![CDATA[Colon cancer impacts one in every twenty Americans. In this episode, host Jerry Franz interviews Dr. Laura Porter, a Stage 4 cancer survivor and part-time consultant for the Colon Cancer Alliance (CCA), to discuss the important work of CCA in the fight against colon cancer.]]></blip:puredescription>
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<br />

Colon cancer impacts one in every twenty Americans. In this episode, host Jerry Franz interviews Dr. Laura Porter, a Stage 4 cancer survivor and part-time consultant for the Colon Cancer Alliance (CCA), to discuss the important work of CCA in the fight against colon cancer.

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  <blip:puredescription><![CDATA[Colon cancer affects 1.2 million people in America and kills 50,000 each year. Most of the time, there are no noticeable symptoms. One of the organizations heading up the fight against this often quiet, but progressive disease is the Colon Cancer Alliance. In this latest installment of the Health Matters at Work podcast series, host Jerry Franz meets with Dr. Laura Porter of the Colon Cancer Alliance. Dr. Porter is herself a survivor of Stage 4 colon cancer, so she knows first-hand the importance of raising awareness of this disease and promoting early detection.]]></blip:puredescription>
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<br />

Colon cancer affects 1.2 million people in America and kills 50,000 each year. Most of the time, there are no noticeable symptoms. One of the organizations heading up the fight against this often quiet, but progressive disease is the Colon Cancer Alliance. In this latest installment of the Health Matters at Work podcast series, host Jerry Franz meets with Dr. Laura Porter of the Colon Cancer Alliance. Dr. Porter is herself a survivor of Stage 4 colon cancer, so she knows first-hand the importance of raising awareness of this disease and promoting early detection.

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  <blip:puredescription><![CDATA[A diagnosis of cancer is always overwhelming and emotional. Thoughts of shock, fear, denial, helplessness and hopelessness may be among them &#8211; but you are not alone. As you take your journey from diagnosis to treatment, having a strong support network is so important. In this episode of the Health Matters at Work&#174; podcast series, host Jerry Franz is joined by three individuals who share stories of their cancer diagnosis and personal experience. Roberta Carlin is a two-time cancer survivor, first appendix cancer and then breast cancer. Dr. Laura Porter is a Stage IV colon cancer survivor, who was first diagnosed during her medical residency. Tom Bognanno is a current cancer patient who at the time of recording was just beginning his fight against prostate cancer. All three of these amazing individuals are sending a message of hope, strength and survival to those who need it.]]></blip:puredescription>
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<br />

A diagnosis of cancer is always overwhelming and emotional. Thoughts of shock, fear, denial, helplessness and hopelessness may be among them &#8211; but you are not alone. As you take your journey from diagnosis to treatment, having a strong support network is so important. In this episode of the Health Matters at Work&#174; podcast series, host Jerry Franz is joined by three individuals who share stories of their cancer diagnosis and personal experience. Roberta Carlin is a two-time cancer survivor, first appendix cancer and then breast cancer. Dr. Laura Porter is a Stage IV colon cancer survivor, who was first diagnosed during her medical residency. Tom Bognanno is a current cancer patient who at the time of recording was just beginning his fight against prostate cancer. All three of these amazing individuals are sending a message of hope, strength and survival to those who need it.

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  <blip:puredescription><![CDATA[Mental illness is a serious medical illness that affects over 57 million Americans &#8211; about one in four people &#8211; yet there is still a real stigma associated with it. This stigma can create an environment where people do not seek help. In fact, only one-third of Americans living with mental illness receive treatment. Mike Fitzpatrick, Executive Director of NAMI (National Alliance on Mental Illness), joined Jerry Franz, host of Health Matters at Work&#174; podcast series, to talk about what NAMI is doing to educate, serve and advocate for people impacted by mental illness.]]></blip:puredescription>
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<br />

Mental illness is a serious medical illness that affects over 57 million Americans &#8211; about one in four people &#8211; yet there is still a real stigma associated with it. This stigma can create an environment where people do not seek help. In fact, only one-third of Americans living with mental illness receive treatment. Mike Fitzpatrick, Executive Director of NAMI (National Alliance on Mental Illness), joined Jerry Franz, host of Health Matters at Work&#174; podcast series, to talk about what NAMI is doing to educate, serve and advocate for people impacted by mental illness.

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  <blip:puredescription><![CDATA[Leukemia and lymphoma are blood cancers that affect 139,000 new patients every year. In fact, there are approximately 912,000 Americans currently living with some form of these cancers. It is now the most prevalent fatal disease in children under age 15. The leading organization combating blood cancers is the Leukemia &amp; Lymphoma Society (LLS). Our host, Jerry Franz, sat down with Donna McKelvey, National Director of LLS&#8217; National Capital Area Chapter, to discuss what the organization is doing to help patients cope with their illness.]]></blip:puredescription>
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<br />

Leukemia and lymphoma are blood cancers that affect 139,000 new patients every year. In fact, there are approximately 912,000 Americans currently living with some form of these cancers. It is now the most prevalent fatal disease in children under age 15. The leading organization combating blood cancers is the Leukemia &amp; Lymphoma Society (LLS). Our host, Jerry Franz, sat down with Donna McKelvey, National Director of LLS&#8217; National Capital Area Chapter, to discuss what the organization is doing to help patients cope with their illness.

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  <category>Health</category>
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  <blip:puredescription><![CDATA[Natasha Thomas, Project Associate for the Newborn Screening Program at Sickle Cell Disease Association of America (SCDAA), joins Jerry Franz, host of the Health Matters at Work podcast series, to discuss how her organization works on behalf of adults and children with sickle cell disease. Sickle cell disease, an inherited blood disorder that affects red blood cells, is one of the few diseases that is regularly diagnosed at birth. Through mandatory genetic testing of infants born in the United States, sickle cell disease is identified early which allows for immediate treatment. However, since the testing for sickle cell disease began in the 1970s, there are some people born earlier who were never properly diagnosed. Sickle cell disease is most prominent in those of African, South American, Turkish, Middle Eastern and Indian descent, as well as those from countries surrounding the Mediterranean Sea. Symptoms of the disease include joint pain, jaundice, chest pain, paler than normal skin and fatigue.]]></blip:puredescription>
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<br />

Natasha Thomas, Project Associate for the Newborn Screening Program at Sickle Cell Disease Association of America (SCDAA), joins Jerry Franz, host of the Health Matters at Work podcast series, to discuss how her organization works on behalf of adults and children with sickle cell disease. Sickle cell disease, an inherited blood disorder that affects red blood cells, is one of the few diseases that is regularly diagnosed at birth. Through mandatory genetic testing of infants born in the United States, sickle cell disease is identified early which allows for immediate treatment. However, since the testing for sickle cell disease began in the 1970s, there are some people born earlier who were never properly diagnosed. Sickle cell disease is most prominent in those of African, South American, Turkish, Middle Eastern and Indian descent, as well as those from countries surrounding the Mediterranean Sea. Symptoms of the disease include joint pain, jaundice, chest pain, paler than normal skin and fatigue.

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  <blip:puredescription><![CDATA[Jill Canfield, a single mother of two children and a trade association attorney, became concerned when her three-year-old daughter Cassie began to experience episodes of extreme thirst along with frequent trips to the bathroom. Shortly after these episodes began, Jill did some research online and then called Cassie&#8217;s pediatrician. On the advice of the pediatrician, Cassie went to the hospital where she was diagnosed with type 1 diabetes. Over the same weekend that Cassie was diagnosed, Jill was learning how to test Cassie&#8217;s blood sugar level and how to monitor her diet. Their lives changed seemingly overnight. As a result of her child&#8217;s diagnosis, Jill added a few more roles to her already busy life &#8211; caregiver, volunteer and advocate. Jill sits down with Health Matters at Work&#174; host Jerry Franz to discuss what that experience was like, as well as the day-to-day challenge of raising a child with diabetes. She became the primary caregiver for Cassie, as well as her healthcare advocate. She also decided to volunteer and advocate on behalf of the Juvenile Diabetes Research Federation. Viewers will learn that it takes a team of parents, doctors, teachers, volunteers and organizations like JDRF and Community Health Charities to improve the lives of people living with chronic diseases like diabetes. About Juvenile Diabetes Research Foundation (JDRF) JDRF is the worldwide leader for research to cure type 1 diabetes. It sets the global agenda for diabetes research, and is the largest charitable funder and advocate of diabetes science worldwide. JDRF LogoThe mission of JDRF is to find a cure for diabetes and its complications through the support of research. Type 1 diabetes is an autoimmune disease that strikes children and adults. People with type 1 diabetes have to test their blood sugar and give themselves insulin injections multiple times or use a pump - each day, every day of their lives. And even with that intensive care, insulin is not a cure for diabetes, nor does it prevent its potential complications, which may include kidney failure, blindness, heart disease, stroke and amputation. JDRF estimates that there are as many as 3 million people in the United States who have type 1 diabetes.]]></blip:puredescription>
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Jill Canfield, a single mother of two children and a trade association attorney, became concerned when her three-year-old daughter Cassie began to experience episodes of extreme thirst along with frequent trips to the bathroom. Shortly after these episodes began, Jill did some research online and then called Cassie&#8217;s pediatrician. On the advice of the pediatrician, Cassie went to the hospital where she was diagnosed with type 1 diabetes. Over the same weekend that Cassie was diagnosed, Jill was learning how to test Cassie&#8217;s blood sugar level and how to monitor her diet. Their lives changed seemingly overnight. As a result of her child&#8217;s diagnosis, Jill added a few more roles to her already busy life &#8211; caregiver, volunteer and advocate. Jill sits down with Health Matters at Work&#174; host Jerry Franz to discuss what that experience was like, as well as the day-to-day challenge of raising a child with diabetes. She became the primary caregiver for Cassie, as well as her healthcare advocate. She also decided to volunteer and advocate on behalf of the Juvenile Diabetes Research Federation. Viewers will learn that it takes a team of parents, doctors, teachers, volunteers and organizations like JDRF and Community Health Charities to improve the lives of people living with chronic diseases like diabetes. About Juvenile Diabetes Research Foundation (JDRF) JDRF is the worldwide leader for research to cure type 1 diabetes. It sets the global agenda for diabetes research, and is the largest charitable funder and advocate of diabetes science worldwide. JDRF LogoThe mission of JDRF is to find a cure for diabetes and its complications through the support of research. Type 1 diabetes is an autoimmune disease that strikes children and adults. People with type 1 diabetes have to test their blood sugar and give themselves insulin injections multiple times or use a pump - each day, every day of their lives. And even with that intensive care, insulin is not a cure for diabetes, nor does it prevent its potential complications, which may include kidney failure, blindness, heart disease, stroke and amputation. JDRF estimates that there are as many as 3 million people in the United States who have type 1 diabetes.

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The diagnosis of a chronic disease or disability can be devastating news for an adult, and even more so for a child. The diagnosis itself often places a family on an emotional, financial and physical roller coaster. Eventually, many parents of children with chronic diseases or disabilities face a time when their child goes back to school for the first time. There are so new things to consider, such as determining who will help your child get to class or how your child will relate to the other kids. Will they do well academically? How well does the school staff understand your child&#8217;s condition? This episode will help viewers understand how to build a support team that includes teachers, school nurses, principals and other key school staff.

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  <blip:puredescription><![CDATA[Community Health Charities invited Mona Locke, National Operations Director for Susan G. Komen for the Cure, to join this Health Matters at Work&#174; video podcast to share information about what the organization is doing to fight breast cancer every day. While the statistics can be startling, there is plenty of hope. Great progress is being made and prevention is still the best medicine. Susan G. Komen for the Cure has continued to promote standard medical guidelines that advise women to begin breast cancer screenings every year after age 40. This simple measure can reduce the incidence of breast cancer tremendously. Be sure to watch this free video podcast to find out more. About Susan G. Komen for the Cure Susan G. Komen fought breast cancer with her heart, body and soul. Throughout her diagnosis, treatments and endless days in the hospital, she spent her time thinking of ways to make life better for other women battling breast cancer instead of worrying about her own situation. That concern for others continued even as Susan neared the end of her fight. Moved by Susan&#8217;s compassion for others and committed to making a difference, Nancy G. Brinker promised her sister that she would do everything in her power to end breast cancer forever. That promise is now Susan G. Komen for the Cure&#174;, the global leader of the breast cancer movement, having invested more than $1.9 billion since its inception in 1982. As the world&#8217;s largest grassroots network of breast cancer survivors and activists, we&#8217;re working together to save lives, empower people, ensure quality care for all and energize science to find the cures. Thanks to events like the Susan G. Komen Race for the Cure&#174; and the Susan G. Komen 3-Day for the Cure&#174;, and generous contributions from our partners, sponsors and fellow supporters, we have become the largest source of nonprofit funds dedicated to the fight against breast cancer in the world.]]></blip:puredescription>
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Community Health Charities invited Mona Locke, National Operations Director for Susan G. Komen for the Cure, to join this Health Matters at Work&#174; video podcast to share information about what the organization is doing to fight breast cancer every day. While the statistics can be startling, there is plenty of hope. Great progress is being made and prevention is still the best medicine. Susan G. Komen for the Cure has continued to promote standard medical guidelines that advise women to begin breast cancer screenings every year after age 40. This simple measure can reduce the incidence of breast cancer tremendously. Be sure to watch this free video podcast to find out more. About Susan G. Komen for the Cure Susan G. Komen fought breast cancer with her heart, body and soul. Throughout her diagnosis, treatments and endless days in the hospital, she spent her time thinking of ways to make life better for other women battling breast cancer instead of worrying about her own situation. That concern for others continued even as Susan neared the end of her fight. Moved by Susan&#8217;s compassion for others and committed to making a difference, Nancy G. Brinker promised her sister that she would do everything in her power to end breast cancer forever. That promise is now Susan G. Komen for the Cure&#174;, the global leader of the breast cancer movement, having invested more than $1.9 billion since its inception in 1982. As the world&#8217;s largest grassroots network of breast cancer survivors and activists, we&#8217;re working together to save lives, empower people, ensure quality care for all and energize science to find the cures. Thanks to events like the Susan G. Komen Race for the Cure&#174; and the Susan G. Komen 3-Day for the Cure&#174;, and generous contributions from our partners, sponsors and fellow supporters, we have become the largest source of nonprofit funds dedicated to the fight against breast cancer in the world.

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  <blip:puredescription><![CDATA[As many people know, hemophilia is a disorder that disrupts the body&#8217;s ability to control bleeding. However, did you know that 30% of those with the condition develop it spontaneously, usually after a serious injury? These and other important facts about hemophilia are discussed in the Health Matters at Work&#174; interview with Angelina Wang, Director of Research &amp; Medical Information at the National Hemophilia Foundation (NHF). Our host Jerry Franz talked with Angelina to shed more light on this disorder that affects 17,000 people in the United States and 450,000 worldwide. NHF advocates for hemophilia awareness and also helps bring more doctors into the field of hematology in order to move towards better treatments and hopefully a cure. With two-thirds of those with hemophilia suffering from severe cases, the work NHF does is as critical as ever. Watch the podcast below to learn more about this disorder and how you can help. About National Hemophilia Foundation The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948, NHF has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations, as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).]]></blip:puredescription>
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As many people know, hemophilia is a disorder that disrupts the body&#8217;s ability to control bleeding. However, did you know that 30% of those with the condition develop it spontaneously, usually after a serious injury? These and other important facts about hemophilia are discussed in the Health Matters at Work&#174; interview with Angelina Wang, Director of Research &amp; Medical Information at the National Hemophilia Foundation (NHF). Our host Jerry Franz talked with Angelina to shed more light on this disorder that affects 17,000 people in the United States and 450,000 worldwide. NHF advocates for hemophilia awareness and also helps bring more doctors into the field of hematology in order to move towards better treatments and hopefully a cure. With two-thirds of those with hemophilia suffering from severe cases, the work NHF does is as critical as ever. Watch the podcast below to learn more about this disorder and how you can help. About National Hemophilia Foundation The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948, NHF has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations, as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).

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  <blip:puredescription><![CDATA[Huntington&apos;s Disease &#8211; a devastating, hereditary, degenerative brain disorder for which there is no cure or treatment &#8211; slowly diminishes an affected individual&apos;s ability to walk, talk and reason. This disease affects young and old alike. Currently, one out of every 10,000 Americans has HD and approximately 200,000 Americans are at risk for developing the disease. The first step of moving toward developing an effective treatment is to understand how the disease works. One of those dedicated to advancing knowledge of HD is Dr. Madeline Harrison, Director of the Huntington&#8217;s Disease Society of America&#8217;s Center of Excellence at the University of Virginia. Dr. Harrison sat down with Community Health Charities to discuss the work HDSA is doing to fight the disease, the progress being made by those dedicated to HD research and a bill that HDSA is currently advocating to the U.S. Congress. Be sure to watch this insightful interview with Dr. Harrison to learn more about HDSA and their efforts to bring hope to the lives of those with HD. About HDSA The Huntington&#8217;s Disease Society of America is a national, voluntary health organization dedicated to improving the lives of people with Huntington&apos;s Disease and their families. HDSA&#8217;s mission is to promote and support research and medical efforts to eradicate HD, assist people and families affected by HD to cope with the problems presented by the disease, and educate the public and health professionals about HD. Through 12 HDSA regions, 38 volunteer-based chapters and affiliates, and 200+ support groups, HDSA reaches out across the nation to offer HD patients and their families guidance, encouragement, resource information and leadership opportunities. HDSA seeks to promote knowledge and awareness of HD through special events, meetings, seminars and advocacy programs in a comprehensive effort to work toward a cure. To learn more, please visit www.hdsa.org.]]></blip:puredescription>
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Huntington&apos;s Disease &#8211; a devastating, hereditary, degenerative brain disorder for which there is no cure or treatment &#8211; slowly diminishes an affected individual&apos;s ability to walk, talk and reason. This disease affects young and old alike. Currently, one out of every 10,000 Americans has HD and approximately 200,000 Americans are at risk for developing the disease. The first step of moving toward developing an effective treatment is to understand how the disease works. One of those dedicated to advancing knowledge of HD is Dr. Madeline Harrison, Director of the Huntington&#8217;s Disease Society of America&#8217;s Center of Excellence at the University of Virginia. Dr. Harrison sat down with Community Health Charities to discuss the work HDSA is doing to fight the disease, the progress being made by those dedicated to HD research and a bill that HDSA is currently advocating to the U.S. Congress. Be sure to watch this insightful interview with Dr. Harrison to learn more about HDSA and their efforts to bring hope to the lives of those with HD. About HDSA The Huntington&#8217;s Disease Society of America is a national, voluntary health organization dedicated to improving the lives of people with Huntington&apos;s Disease and their families. HDSA&#8217;s mission is to promote and support research and medical efforts to eradicate HD, assist people and families affected by HD to cope with the problems presented by the disease, and educate the public and health professionals about HD. Through 12 HDSA regions, 38 volunteer-based chapters and affiliates, and 200+ support groups, HDSA reaches out across the nation to offer HD patients and their families guidance, encouragement, resource information and leadership opportunities. HDSA seeks to promote knowledge and awareness of HD through special events, meetings, seminars and advocacy programs in a comprehensive effort to work toward a cure. To learn more, please visit www.hdsa.org.

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The diagnosis of a chronic disease or disability can be devastating news for an adult and even more so for a child. The diagnosis itself can place a family on an emotional, financial and physical roller coaster. Doctor appointments, treatments and therapies, and managing a child&#8217;s caregiving plan can be incredibly stressful. Community Health Charities invited Gretchen Voglezang from MommyCast to be the guest host for a special Health Matters at Work&#174; podcast series on caring for children with a chronic condition. Community Health Charities also asked three mothers of children with chronic conditions to share their experiences from a mother&#8217;s perspective. Cathy Kanefsky, representing Autism Speaks, is a mother of twin boys with autism. Ms. Kanefsky shares her journey of navigating autism during a time when very little was known about the condition. Deb Cumbo, representing the Muscular Dystrophy Association, talks about her family&#8217;s journey when her son was diagnosed with Duchenne muscular dystrophy at a very early age. Liz Smith, representing the Arthritis Foundation, raises awareness of the reality of juvenile arthritis as she talks about her daughter&#8217;s experience with the disease. All three of their stories are inspiring and provide hope.

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  <media:title>Help For Moms When Talking to Their Child's Doctor</media:title>
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  <title>Caring for Children with chronic diseases and disabilities</title>
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  <blip:puredescription><![CDATA[The diagnosis of a chronic disease or disability can be devastating news for an adult and even more so for a child. The diagnosis itself can place a family on an emotional, financial, and physical roller coaster. Doctor appointments, treatment and therapy, and managing a child&#8217;s care-giving plan can be stressful. Community Health Charities invited Gretchen Voglezang from MommyCast to be a special guest host for Health Matters at Work&#174; podcast series on caring for children with a chronic condition. Community Health Charities also asked three mothers of children with chronic conditions to share the experience from a mother&#8217;s perspective. Cathy Kanefsky, representing Autism Speaks, is a mother of twin boys with autism. Kanefsky shares her journey of navigating Autism during a time when very little was known about the condition. Deb Cumbo, representing Muscular Dystrophy Association, talks about her family&#8217;s journey when her son was diagnosed with Duchenne muscular dystrophy a very early age. Liz Smith, representing the Arthritis Foundation, raises awareness of the reality of juvenile arthritis as she talks about her daughter&#8217;s experience with juvenile arthritis. All their stories are inspiring and provide hope.]]></blip:puredescription>
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<br />

The diagnosis of a chronic disease or disability can be devastating news for an adult and even more so for a child. The diagnosis itself can place a family on an emotional, financial, and physical roller coaster. Doctor appointments, treatment and therapy, and managing a child&#8217;s care-giving plan can be stressful. Community Health Charities invited Gretchen Voglezang from MommyCast to be a special guest host for Health Matters at Work&#174; podcast series on caring for children with a chronic condition. Community Health Charities also asked three mothers of children with chronic conditions to share the experience from a mother&#8217;s perspective. Cathy Kanefsky, representing Autism Speaks, is a mother of twin boys with autism. Kanefsky shares her journey of navigating Autism during a time when very little was known about the condition. Deb Cumbo, representing Muscular Dystrophy Association, talks about her family&#8217;s journey when her son was diagnosed with Duchenne muscular dystrophy a very early age. Liz Smith, representing the Arthritis Foundation, raises awareness of the reality of juvenile arthritis as she talks about her daughter&#8217;s experience with juvenile arthritis. All their stories are inspiring and provide hope.

]]></description>
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  <category>Health</category>
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  <link>http://blip.tv/health-matters-at-work/spotlight-on-cystic-fibrosis-foundation-5130023</link>
  <title>Spotlight on Cystic Fibrosis Foundation</title>
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  <blip:puredescription><![CDATA[Charity Spotlight: Cystic Fibrosis Foundation Cystic Fibrosis (CF) is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States. Approximately 1,000 new cases are diagnosed each year. In the 1950s, few children with CF lived to attend elementary school. Today, advances in research and medical treatments have enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s, and beyond. To raise awareness of CF, Community Health Charities invited Leslie Hazle, Director of Patient Resources at Cystic Fibrosis Foundation, to join the Health Matters at Work&#174; video podcast series. Ms. Hazle shares patient-friendly information on this genetic disease and discusses many of the promising breakthroughs in research. About the Partnering Member Charity &#8211; Cystic Fibrosis Foundation The Cystic Fibrosis Foundation is the leading organization in the United States devoted to CF. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and more than 75 chapters and branch offices nationwide. Its mission is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. To learn more about CFF and the programs and services offered in your community, please visit www.cff.org.]]></blip:puredescription>
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<br />

Charity Spotlight: Cystic Fibrosis Foundation Cystic Fibrosis (CF) is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States. Approximately 1,000 new cases are diagnosed each year. In the 1950s, few children with CF lived to attend elementary school. Today, advances in research and medical treatments have enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s, and beyond. To raise awareness of CF, Community Health Charities invited Leslie Hazle, Director of Patient Resources at Cystic Fibrosis Foundation, to join the Health Matters at Work&#174; video podcast series. Ms. Hazle shares patient-friendly information on this genetic disease and discusses many of the promising breakthroughs in research. About the Partnering Member Charity &#8211; Cystic Fibrosis Foundation The Cystic Fibrosis Foundation is the leading organization in the United States devoted to CF. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and more than 75 chapters and branch offices nationwide. Its mission is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. To learn more about CFF and the programs and services offered in your community, please visit www.cff.org.

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  <category>Art</category>
  <blip:youtube_category>Science &amp; Technology</blip:youtube_category>
  <category>cf</category>
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  <category>community health charities</category>
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  <pubDate>Fri, 06 May 2011 12:20:19 +0000</pubDate>
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  <media:title>Spotlight on Cystic Fibrosis Foundation</media:title>
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  <title>Insight into Autism: A Spotlight on Autism Speaks</title>
  <blip:user>jgallisdorfer</blip:user>
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  <blip:show>Health Matters at Work</blip:show>
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  <blip:datestamp>2011-04-15T10:00:06Z</blip:datestamp>
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  <blip:core_value>5</blip:core_value>
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  <blip:puredescription><![CDATA[Today, it is estimated that one of every 110 children is diagnosed with autism, making it more common than childhood cancer, juvenile diabetes and pediatric AIDS combined. Community Health Charities is partnering with member charity Autism Speaks for a discussion about the challenges parents face when dealing with an unexpected diagnosis of autism and the many medical, lifestyle, social and emotional issues surrounding the care of their child. Cathy Kanefsky, mother of twin boys with autism and Vice President, Field and Chapter Development for Autism Speaks, shares her personal story and professional insight on what parents can expect and where to turn for help. About Member Charity - Autism Speaks Autism Speaks was founded in February 2005 by Bob and Suzanne Wright, grandparents of a child with autism. Since then, Autism Speaks has grown into the nation&apos;s largest autism science and advocacy organization. Autism Speaks is dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. Autism Speaks brings hope to all who deal with the hardships of this disorder. Autism Speaks also aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis.]]></blip:puredescription>
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<br />

Today, it is estimated that one of every 110 children is diagnosed with autism, making it more common than childhood cancer, juvenile diabetes and pediatric AIDS combined. Community Health Charities is partnering with member charity Autism Speaks for a discussion about the challenges parents face when dealing with an unexpected diagnosis of autism and the many medical, lifestyle, social and emotional issues surrounding the care of their child. Cathy Kanefsky, mother of twin boys with autism and Vice President, Field and Chapter Development for Autism Speaks, shares her personal story and professional insight on what parents can expect and where to turn for help. About Member Charity - Autism Speaks Autism Speaks was founded in February 2005 by Bob and Suzanne Wright, grandparents of a child with autism. Since then, Autism Speaks has grown into the nation&apos;s largest autism science and advocacy organization. Autism Speaks is dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. Autism Speaks brings hope to all who deal with the hardships of this disorder. Autism Speaks also aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis.

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  <media:title>Insight into Autism: A Spotlight on Autism Speaks</media:title>
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  <blip:puredescription><![CDATA[Community Health Charities partners with member charities Leukemia &amp; Lymphoma Society (LLS) and National Kidney Foundation (NKF) during National Donate Life Month to raise awareness about the importance of becoming a donor. Approximately every four minutes, one person in the United States is diagnosed with a blood cancer. More than 110,000 men, women and children currently need a life-saving organ transplant, and each day more than 18 people die waiting for one. Donna Eichna, an Inpatient Stem Cell Transplant Coordinator for Inova Fairfax Hospital representing LLS, and Bill Singleton, a long-time NKF volunteer and former board member, talks about the need for organ and bone marrow donors. As a living kidney donor, Mr. Singleton shares a unique message to donors and recipients who await a life-saving organ transplant. Ms. Eichna shares her hands-on experience of working with patients, her knowledge of bone marrow transplantation and how easy it is to become a donor.]]></blip:puredescription>
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<br />

Community Health Charities partners with member charities Leukemia &amp; Lymphoma Society (LLS) and National Kidney Foundation (NKF) during National Donate Life Month to raise awareness about the importance of becoming a donor. Approximately every four minutes, one person in the United States is diagnosed with a blood cancer. More than 110,000 men, women and children currently need a life-saving organ transplant, and each day more than 18 people die waiting for one. Donna Eichna, an Inpatient Stem Cell Transplant Coordinator for Inova Fairfax Hospital representing LLS, and Bill Singleton, a long-time NKF volunteer and former board member, talks about the need for organ and bone marrow donors. As a living kidney donor, Mr. Singleton shares a unique message to donors and recipients who await a life-saving organ transplant. Ms. Eichna shares her hands-on experience of working with patients, her knowledge of bone marrow transplantation and how easy it is to become a donor.

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  <pubDate>Fri, 01 Apr 2011 13:00:12 +0000</pubDate>
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  <title>Talking to Children About HIV</title>
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  <blip:puredescription><![CDATA[It is never easy to talk with your kids about sex. But each year, there are approximately 19 million new STD infections, and almost half of them are among young people ages 15 to 24. In 2009, 46% of high school students reported having sexual intercourse and 14% already had four or more sex partners. These statistics show how critically important it is to have this conversation with your kids. To help parents with this conversation, Community Health Charities invited Chris Collins, Vice President and Director of Public Policy at amfAR, to talk about these current trends and share information and resources that may help you talk with your kids. Collins has spent more than 18 years working in HIV/AIDS policy and advocacy. He is the author of Improving Outcomes: Blueprint for a National AIDS Plan for the United States, which was published by the Open Society Institute in 2007. Most recently, Collins was a consultant on policy and communications efforts for organizations including the Coalition for a National AIDS Strategy and the Bill &amp; Melinda Gates Foundation, where he helped coordinate the Foundation&#8217;s Global HIV Prevention Working Group and reviewed grant proposals. Additionally, Collins co-founded the AIDS Vaccine Advocacy Coalition (AVAC) in 2002 and served as its executive director for two years, leading the organization&#8217;s advocacy and development efforts. He continues to serve on the board of AVAC. He also served as chief adviser to U.S. Rep. Nancy Pelosi (D-CA) on HIV/AIDS and health policy, a role in which he developed the first Congressional legislation designed to provide incentives for the development and delivery of vaccines against AIDS, malaria, and TB. Watch our video podcast on &#8220;Talking to Your Kids about HIV/AIDS.&#8221; In this episode, you will learn startling statistics and information about sexually-active kids under the age of 18, the HIV/AIDS infection rates, and information and resources available to parents to help guide conversations about sexually transmitted diseases. Founded in 1985, amfAR is dedicated to ending the global AIDS epidemic through innovative research. With the freedom and flexibility to respond quickly to emerging areas of scientific promise, amfAR plays a catalytic role in accelerating the pace of HIV/AIDS research and achieving real breakthroughs. amfAR-funded research has increased the understanding of HIV and helped lay the groundwork for major advances in the study and treatment of HIV/AIDS. Since 1985, amfAR has invested nearly $325 million in its mission and has awarded grants to more than 2,000 research teams worldwide. To learn more, please visit amfAR&#8217;s Web site at ;www.amfar.org .]]></blip:puredescription>
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<br />

It is never easy to talk with your kids about sex. But each year, there are approximately 19 million new STD infections, and almost half of them are among young people ages 15 to 24. In 2009, 46% of high school students reported having sexual intercourse and 14% already had four or more sex partners. These statistics show how critically important it is to have this conversation with your kids. To help parents with this conversation, Community Health Charities invited Chris Collins, Vice President and Director of Public Policy at amfAR, to talk about these current trends and share information and resources that may help you talk with your kids. Collins has spent more than 18 years working in HIV/AIDS policy and advocacy. He is the author of Improving Outcomes: Blueprint for a National AIDS Plan for the United States, which was published by the Open Society Institute in 2007. Most recently, Collins was a consultant on policy and communications efforts for organizations including the Coalition for a National AIDS Strategy and the Bill &amp; Melinda Gates Foundation, where he helped coordinate the Foundation&#8217;s Global HIV Prevention Working Group and reviewed grant proposals. Additionally, Collins co-founded the AIDS Vaccine Advocacy Coalition (AVAC) in 2002 and served as its executive director for two years, leading the organization&#8217;s advocacy and development efforts. He continues to serve on the board of AVAC. He also served as chief adviser to U.S. Rep. Nancy Pelosi (D-CA) on HIV/AIDS and health policy, a role in which he developed the first Congressional legislation designed to provide incentives for the development and delivery of vaccines against AIDS, malaria, and TB. Watch our video podcast on &#8220;Talking to Your Kids about HIV/AIDS.&#8221; In this episode, you will learn startling statistics and information about sexually-active kids under the age of 18, the HIV/AIDS infection rates, and information and resources available to parents to help guide conversations about sexually transmitted diseases. Founded in 1985, amfAR is dedicated to ending the global AIDS epidemic through innovative research. With the freedom and flexibility to respond quickly to emerging areas of scientific promise, amfAR plays a catalytic role in accelerating the pace of HIV/AIDS research and achieving real breakthroughs. amfAR-funded research has increased the understanding of HIV and helped lay the groundwork for major advances in the study and treatment of HIV/AIDS. Since 1985, amfAR has invested nearly $325 million in its mission and has awarded grants to more than 2,000 research teams worldwide. To learn more, please visit amfAR&#8217;s Web site at ;www.amfar.org .

]]></description>
  <comments>http://blip.tv/file/4870043</comments>
  <category>Art</category>
  <blip:youtube_category>Education</blip:youtube_category>
  <category>hiv</category>
  <category>aids</category>
  <category>amfar</category>
  <category>community health charities</category>
  <category>american foundation for aids research</category>
  <category>jerry franz</category>
  <category>james gallisdorfer</category>
  <category>health matters at work</category>
  <category>childhood coaching</category>
  <category>teenage sex</category>
  <category>std</category>
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  <pubDate>Tue, 15 Mar 2011 10:05:07 +0000</pubDate>
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  <blip:puredescription><![CDATA[We often learn about genetic diseases and their impact from the medical community &#8211; we learn what they are, possible treatments, life expectancy, and even what limitations the disease might impose. Through its Health Matters at Work &#174; program, Community Health Charities brings representatives together from the Sickle Cell Disease Association of America and National Hemophilia Foundation. ;Together they share their own personal experiences in addressing challenging issues like genetic screening and working with an employer when one of these diseases affects you.]]></blip:puredescription>
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<br />

We often learn about genetic diseases and their impact from the medical community &#8211; we learn what they are, possible treatments, life expectancy, and even what limitations the disease might impose. Through its Health Matters at Work &#174; program, Community Health Charities brings representatives together from the Sickle Cell Disease Association of America and National Hemophilia Foundation. ;Together they share their own personal experiences in addressing challenging issues like genetic screening and working with an employer when one of these diseases affects you.

]]></description>
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  <blip:puredescription><![CDATA[Lupus disease affects 1.5 million Americans. In this video podcast, you will learn about the different parts of the body that lupus affects, its symptoms and history. In addition, Dr. Collins from the Lupus Foundation of America will discuss how to manage the disease in adults including key symptoms in women, research and advocacy efforts. Don&apos;t forget to watch the special PSA at the end of the video featuring Scrubs&apos; star, Sarah Chalke.]]></blip:puredescription>
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<iframe src="http://blip.tv/play/hvITgpTZDQI.html?p=1" width="480" height="300" frameborder="0" allowfullscreen></iframe><embed type="application/x-shockwave-flash" src="http://a.blip.tv/api.swf#hvITgpTZDQI" style="display:none"></embed>
<br />

Lupus disease affects 1.5 million Americans. In this video podcast, you will learn about the different parts of the body that lupus affects, its symptoms and history. In addition, Dr. Collins from the Lupus Foundation of America will discuss how to manage the disease in adults including key symptoms in women, research and advocacy efforts. Don&apos;t forget to watch the special PSA at the end of the video featuring Scrubs&apos; star, Sarah Chalke.

]]></description>
  <comments>http://blip.tv/file/4514837</comments>
  <category>Health</category>
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  <pubDate>Wed, 15 Dec 2010 16:04:20 +0000</pubDate>
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  <title>Spotlight: Juvenile Diabetes Research Foundation</title>
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  <blip:puredescription><![CDATA[Each year, more than 15,000 children are diagnosed with Type 1 diabetes in the United States &#8211; that&#8217;s approximately 40 children per day. Larry Soler, Executive Vice President, Government Relations and Operations of the Juvenile Diabetes Research Foundation (JDRF), visited the set of Health Matters at Work&#174; to help Community Health Charities spread the word about diabetes.]]></blip:puredescription>
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<br />

Each year, more than 15,000 children are diagnosed with Type 1 diabetes in the United States &#8211; that&#8217;s approximately 40 children per day. Larry Soler, Executive Vice President, Government Relations and Operations of the Juvenile Diabetes Research Foundation (JDRF), visited the set of Health Matters at Work&#174; to help Community Health Charities spread the word about diabetes.

]]></description>
  <comments>http://blip.tv/file/4453676</comments>
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  <title>Spotlight: American Diabetes Association</title>
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  <blip:puredescription><![CDATA[November is American Diabetes month and Community Health Charities through its Health Matters at Work&#174; program has partnered with the America Diabetes Association to spread the word on how you can help Stop Diabetes. National Board Past Chair of the American Diabetes Association, R. Stewart Perry, invites you to join the movement to Stop Diabetes. The American Diabetes Association is rallying Americans to take action and join the movement to Stop Diabetes during the month of November. Past Chair, R. Stewart Perry explains how people can SHARE - ACT - LEARN - GIVE to help Stop Diabetes. The American Diabetes Association is leading the fight against the deadly consequences of diabetes and fighting for those affected by the disease. The Association funds research to prevent, cure and manage diabetes; delivers services to hundreds of communities; provides objective and credible information; and gives voice to those denied their rights because of diabetes. Discover more ways to become engaged in American Diabetes Month by visiting stopdiabetes.com, calling 1-800-DIABETES or texting JOIN to 69866 (standard data and message rates apply). For more information on Health Matters at Work, visit www.healthcharities.org.]]></blip:puredescription>
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<br />

November is American Diabetes month and Community Health Charities through its Health Matters at Work&#174; program has partnered with the America Diabetes Association to spread the word on how you can help Stop Diabetes. National Board Past Chair of the American Diabetes Association, R. Stewart Perry, invites you to join the movement to Stop Diabetes. The American Diabetes Association is rallying Americans to take action and join the movement to Stop Diabetes during the month of November. Past Chair, R. Stewart Perry explains how people can SHARE - ACT - LEARN - GIVE to help Stop Diabetes. The American Diabetes Association is leading the fight against the deadly consequences of diabetes and fighting for those affected by the disease. The Association funds research to prevent, cure and manage diabetes; delivers services to hundreds of communities; provides objective and credible information; and gives voice to those denied their rights because of diabetes. Discover more ways to become engaged in American Diabetes Month by visiting stopdiabetes.com, calling 1-800-DIABETES or texting JOIN to 69866 (standard data and message rates apply). For more information on Health Matters at Work, visit www.healthcharities.org.

]]></description>
  <comments>http://blip.tv/file/4395335</comments>
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