Balancing Privacy and Access: Consumer Centered Participation in Research

Genetic Alliance


About this episode

TV-UN

Genetic Alliance webinarsSeries: Strategies for SuccessDate: April 8, 2009Genetic Alliance and Private Access have created a system which, built on the trust model of communities, enables individuals to participate in clinical trials, biobanks and newborn screening blood spot banking. Join Private Access for an in depth discussion about the future of patient privacy in the ever-changing health IT arena. Find out how Private Access will help patients control their privacy on their own terms with a powerful suite of new web-based solutions. Learn how the development of these tools will help accelerate faster diagnoses and treatments for diseases as well as chronic illnesses, reduce the costs of clinical trials, and allow patients to take an empowered role in their health care with the ability to request and transfer medical records with the click of a mouse. Join us to experience this solution that will enable reconsent, and robust privacy and confidentiality.Presenters:Robert Shelton - Founder & CEO, Private Access, Inc.Marc Kirshbaum - President & COO, Private Access, Inc.

  • Release Date

    Apr 8, 2009
  • Runtime

    01:17:25

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