Genetic Alliance
About this original series
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# Episodes
21 episodes -
Rating
TV-UN
Episodes of Genetic Alliance
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Applying Emerging Social Media Technologies to H...
Genetic Alliance webinarsSeries: Strategies for SuccessDate: April 29, 2009Join us to discuss the use of emerging social media technologies in health advocacy and nonprofit organizations. Presenters will review the current types of social media tools, the relevance of social media to health advocacy and nonprofit organizations, and trends in uses of social media and social media users. The presentation will include tips on how to assess the value of social media tools within your organization,...
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Release date
Apr 29, 2009
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Runtime
57:17
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GINA Implementation: Title II
Genetic Alliance webinarsSeries: Hot Topics in Genetics and AdvocacyDate: April 22, 2009 This session, presented in part by the Coalition for Genetic Fairness, will provide an update on the implementation of the Genetic Information Nondiscrimination Act (GINA), highlighting recent activities surrounding the employment provisions (Title II) of the law. Presenters will discuss the benefits and limitations of the law, utilizing the framework of the notice of proposed rulemaking (NPRM) released on...
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Release date
Apr 22, 2009
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Runtime
01:00:43
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Getting Involved in DNA Day 2009
Genetic Alliance webinarsSeries: Hot Topics in Genetics and AdvocacyDate: April 15, 2009Join us in discussing DNA Day 2009. Created in 2003, DNA Day celebrates the completion of the Human Genome Project and the discovery of the double helix. This year DNA Day will be celebrated on April 25. Presenters will update the community about activities, new initiatives, and ways to support the day or get involved locally.Presenters:Carla L. Easter - Science Education Specialist, National Human Genome R...
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Release date
Apr 15, 2009
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Runtime
47:06
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Balancing Privacy and Access: Consumer Centered ...
Genetic Alliance webinarsSeries: Strategies for SuccessDate: April 8, 2009Genetic Alliance and Private Access have created a system which, built on the trust model of communities, enables individuals to participate in clinical trials, biobanks and newborn screening blood spot banking. Join Private Access for an in depth discussion about the future of patient privacy in the ever-changing health IT arena. Find out how Private Access will help patients control their privacy on their own terms wit...
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Release date
Apr 8, 2009
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Runtime
01:17:25
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Update on the Advisory Committee on Heritable Di...
Genetic Alliance webinarsSeries: Hot Topics in Genetics and Advocacy Date: March 18, 2009 Join us in discussing the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC). This Committee provides information and advice on newborn screening to the government and the public. In addition to updating the community about the February proceedings of the ACHDNC, the presenters will explain the role of advocacy groups in newborn screening and the process of nominating a condition ...
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Release date
Mar 18, 2009
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Runtime
53:58
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The Future of Human Genome Research
Genetic Alliance webinarsSeries: Hot Topics in Genetics and Advocacy Date: February 25, 2009During the session, representatives from the National Human Genome Research Institute (NHGRI) will present the Institute’s recently released long-range planning white papers, which include the topics of diagnostics, preventive medicine, and pharmacogenomics; therapeutics; education and community engagement; and genome sequencing. The papers were developed to invite dialogue and exchange on these topic a...
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Release date
Feb 25, 2009
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Runtime
47:20
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Meet Your Neighbors: The Western States Regional...
Genetic Alliance webinarsSeries: Meet Your Neighbors Date: February 18, 2009 The Western States Regional Genetics Services Collaborative (WSGSC) is a HRSA funded regional project that seeks to coordinate and increase access to genetic services for children with disorders detected by the newborn screening blood test, birth defects and with other genetic disorders. The participating states and territory in the WSGSC are: Alaska, California, Guam, Hawaii, Idaho, Oregon, and Washington. Kerry Silv...
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Release date
Feb 18, 2009
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Runtime
54:15
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How Genetic Discoveries are Being Translated Int...
Genetic Alliance webinarsSeries: Meet Your Neighbors Date: February 4, 2009 Join the American College of Medical Genetics (ACMG) executive director Michael S. Watson, PhD, FACMG; president-elect Bruce R. Korf MD, PhD, FACMG; and genetic counselor and ACMG project director Judith Benkendorf, MS, CGC for a lively discussion of what is happening in genetic medicine and hear about exciting ACMG plans for 2009 and beyond. The field of genomics and its application to healthcare is developing at a di...
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Release date
Feb 4, 2009
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Runtime
01:15:04
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Narratives of Heritability: Privileging Family S...
Genetic Alliance webinarsSeries: Hot Topics in Genetics and Advocacy Date: January 28, 2009 In this session, presenters share the results of a two-year project on “narrative genetics.” Narrative genetics is the exploration of how genetic understanding and belief are expressed through story, and of the impact on our person, our society and our culture of those narratives. The study of “Family Stories” explores how mainly low income minority women understand and make sense of heritability in the...
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Release date
Jan 28, 2009
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Runtime
38:06
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New York-Mid-Atlantic Consortium for Genetics an...
Genetic Alliance webinarsSeries: Meet Your Neighbors Date: January 21, 2009 Join us to discuss the programs and projects of NYMAC. Get an update on the new initiatives and advances made in this region for genetics and newborn screening services.
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Release date
Jan 21, 2009
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Runtime
41:58
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